Home
News & Events
Services & Activities
Research
National Centre
Autism Network Journal
About Autism
Helpline: Q & A
Autism in India
Links in India
Organizations Worldwide
About Us
Get Involved with AFA
Contact Us

 

 

Action for Autism
Pocket 7 & 8
Jasola Vihar
New Delhi-110025
INDIA


Tel: +91-11-65347422
Tel: +91-11-40540991/2
Fax: +91-11-40540994

actionforautism@gmail.com




Selected Past Workshops and Training Opportunities

In addition to the yearly workshops conducted by Action for Autism in New Delhi, and workshops conducted by the organization in other cities, AFA has helped organize and promote regular parent and professional workshops and lectures. Some of these are listed below.


Action For Autism
30-31 July 2010

National Centre for Autism

"Understanding & Including Children with ASD"

Children with autism and other social-communication disorders often face difficulties in coping with the demands of the mainstream classroom, in spite of supportive teachers and intellectual and cognitive capability. Their different social understanding make them appear to be disruptive and provocative, and they often end up being punished repeatedly, leading to spiralling behaviours and what are perceived as 'disciplinary issues'.

Action for Autism is conducting a two-day workshop to train mainstream teachers, special needs teachers, OTs, SLPs, vocational trainers, psychologists and anyone involved in helping individuals with autism receive an education in mainstream classrooms.

The sessions will focus on planning and executing flexible and effective curriculum and learning environments. Participants will understand how to implement curriculum for the ASD students that can improve their quality of life.

Workshop information

Dr Vikram Dua
7 April 2010

National Centre for Autism

"Current Understanding Of The Diagnosis Of Autism And Treatment Options"
The incidence of autism is growing at an alarming, almost epidemic rate. One of the reasons for this is the staggering increase in the number of reported cases of autism. This may be partially due to an increase in awareness and improvements in diagnosis. Can these alone account for the increases that have been observed? Is this indeed autism?

As parents and professionals together struggle to make sense of the autism spectrum and the multiple treatment modalities, the talk also highlighted the benefits of mainstream and alternate intervention options available. The talk was directed at parents, professionals and to policy makers and all those who have an impact on autism services and research in the country.

ABOUT THE SPEAKER
Dr Vikram Dua is a child and adolescent neuropsychiatrist based in Vancouver, Canada, with a specialized expertise in autism spectrum disorders. After completing his education through highly respected institutions, including Harvard Medical School, University of Toronto, McMaster University, and the University of Massachusetts, Dr Dua is now on the faculty at the University of British Columbia, and practices out of the BC Children’s Hospital.

Dr Dua has been working in the area of autism for more than a decade and is considered a leader in the field in Canada. In addition to a vast amount of clinical work with children and youth with ASD, his accomplishments have included development and writing of the British Columbia Government autism assessment policy, founding and establishing the BC Autism Assessment Network, public awareness, training and education, advocacy, and research. He has given dozens of lectures and workshops to professionals, families, and the general public.

 

Matthew Belmonte
25 January 2010

National Centre for Autism

"Between Two Cultures: Autism in the Family and Autism as a Science"
This talk presented some scientific results on autism linked with the personal view of a scientist and autism family member. Why do scientific research on autism? What will it gain for the people whom we care about? Is it even possible to explain all the complexities of autistic behavior in terms of brain functions and genes? Basic research on attentional functions of the autistic brain will be related to applied study of communication methods and other therapies, motivated by the question of which lines of research have the potential to improve the quality of life for people with autism spectrum conditions.

ABOUT THE SPEAKER
Matthew Belmonte is an assistant professor in the Department of Human Development at Cornell University, and a senior research associate at the Autism Research Centre, University of Cambridge. His research focuses on how autism risk tends to run in families, and what makes the difference between autistic and non-autistic family members. He also has interests in personal narratives of autism and the relation of autistic cognition to literary theory. His older brother and his niece are autistic.

 

Christopher Flint, Lally Daley and Heera Chandani
29-30 December 2009

National Centre for Autism

Structured Teaching

AFA hosted a two-day training workshop on Structured Teaching. Structured Teaching is an approach based on TEACCH. TEACCH developed the concept of the ‘culture of autism’ as a way of thinking about the characteristic patterns of thinking and behaviour seen in individuals with ASD. TEACCH is a family-centered, evidence-based teaching practice that is supported by empirical research and extensive clinical expertise, and is notable for its flexible and person-centred support for individuals of all ages and skill levels.

The workshop wasl be conducted by Christopher Flint, Lally Daley and Heera Chandani. Christopher and his team provided an overview of the structured teaching philosophy and implementation as it applies to children with ASD and other developmental disorders. They presented the information in an interactive video format where participants had a chance to watch children engaged using the principles of structure. Participants learned about schedules, learning tasks, assessment, communication, leisure, and behaviour management; as well as having the opportunity to practice making structured activities involving a variety of skills.

Action For Autism
28 January 2009

National Centre for Autism

"Enabling Communication"

Language and communication take completely different developmental paths in autism unlike in other developmental disabilities. In autism, speech does not equate communication. Language may develop with the child having little idea how to use it for communication or even to understand how others use language for communication. Much of the inappropriate behaviours in autism have their root in these difficulties. Children with autism are often therefore mistakenly perceived to be ‘stubborn’ or ‘willfull’.

The workshop covered the following aspects:
• an understanding of differences in the development of communication in autism
• ways to teach communicative function
• development of communication using both speech as well as assistive and augmentative modes of communication
• overview of different AACs

The workshop incorporated question answer sessions and interactive demonstrations and was open to parents, professionals and anyone who works with children with developmental disabilities on a dayto- day basis.

Action For Autism
27 January 2009
National Centre for Autism

"Behaviour Modification"

Behaviour modification is used in teaching all children, and in changing behaviours in adults as well. However, it plays a particularly significant role in the management of children with various developmental differences. Behaviour modification is used in teaching children to 'attend’, develop communication, learn cognitive skills, control ‘temper tantrums’, and for helping the child learn appropriate and socially accepted behaviours.

The workshop covered the following aspects:
• an understanding of the reasons behind behaviours
• functional assessment of behaviours, and
• management procedures

Though the workshop focused on autism spectrum disorders, the methods covered are equally effective with all children with developmental delays. The workshop incorporated question answer sessions where participants were encouraged to problem solve. The workshop was open, but not limited, to anyone who works with children with developmental disabilities on a day-to-day basis.

Sara Ann Schuchert
9 January 2009
India Habitat Center, Gulmohar Hall

"Muscles to Minds: A Parent & Educator Workshop"

Sara Ann Schuchert, founder of Language Development Services, took participants through a lively workshop and discussion of the brain, language learning and kinesthetic development. The workshop begins with a clear, succinct overview of neurological, motor and linguistic development. Then, as she discussed the underpinnings of the learning process, participants were encouraged to join in rhyming, games, and dances that exemplify how movement and communication open the doors of learning. Admission was free courtesy the India Habitat Centre.

Email: languagedevelopment@gmail.com, actionforautism@gmail.com
Website: www. languagedevelopmentonline.com, www.autism-india.org

.

Karen Umstead, BCABA
Executive Director, Beautiful Minds, Princeton, NJ (USA)
27th-28th November 2008

"Workshop on Behaviour Intervention Techniques in the Classroom"

This programme was a two-day workshop by Ms. Karen Umstead BCABA, Executive Director of Beautiful Minds of Princeton, US to teach behaviour intervention techniques to mainstream teachers, special needs teachers, OTs, SLPs, vocational trainers, psychologists and anyone involved in helping children with different abilities.

The sessions focused on understanding behaviour, functional behaviour assessment, using positive behaviour support, working with behavioural and emotional difficulties, crisis prevention, verbal de-escalation techniques, social skills, etc. Behaviour Intervention Techniques can be used with all children for successful learning. It is particularly effective to children having various developmental disabilities Children with autism and other social-communication disorders often face difficulties in coping with the demands of the mainstream classroom, in spite of having supportive teachers and intellectual and cognitive capability.

Karen Umstead is a Board Certified Associate Behavior Analyst who has worked with children and families with special needs for many years. She has presented trainings or consultations to a variety of institutions and individuals including families, teachers (general, special, special area), paraprofessionals, administration, related service personnel, child study members, camp counselors, and bus drivers. She has a working knowledge of American Sign Language (ASL) and is well versed in the use of augmentative communication devices. Ms. Umstead’s expertise as a behavior specialist, trainer, and consultant has enhanced positive behavior supports for students at the preschool and elementary level.

Action for Autism
7 May, 2008
National Centre for Autism

"Enabling Communication"

Unlike other developmental disabilities, language and communication take completely different developmental paths in autism. Speech does not equate communication. While some individuals with autism develop no speech, others may be vocal at different levels. Language may develop with the child having little idea how to use it for communication or even to understand how others use language for communication. Much of the inappropriate behaviours in autism have their root in these difficulties. Children with autism are often therefore mistakenly perceived to be ‘stubborn’ or ‘willful’.

The workshop covered an understanding of differences in the development of communication in autism and ways to teach communicative function and the use of both speech as well as assistive and augmentative modes of communication. The workshop also incorporated question answer sessions and interactive demonstrations. The workshop was open to parents, professionals and anyone who works with children with developmental disabilities on a day-to-day basis.


Action for Autism
6 May, 2008
National Centre for Autism

"Behaviour Modification: At Home, At School and In the Community"

Understanding why we do some things and not do others can enable us to increase those behaviours that we want more of, and help bring down behaviours that we would not want repeated.

Behaviour modification is used with all children, but plays a particularly significant role in the management of children with various developmental disabilities. The difficulties faced by individuals on the autistic spectrum in particular often manifest as complex and challenging behaviours to the non-autistic world. Behaviour modification with the reinforcing of wanted behaviours is the cornerstone of management of autism: in changing behaviours as well as in teaching skills. Behaviour modification is used in teaching children to ‘attend’, control ‘temper tantrums’, and for helping the child learn appropriate and socially accepted behaviours.

The workshop covered an understanding of the reasons behind behaviours, assessment, and management procedures. Though the workshop focused on autism spectrum disorders, the methods to be covered are also effective with children with developmental delays.

The workshop incorporated question answer sessions where participants will be encouraged to problem solve. The workshop was open, but not limited, to anyone who works with children with developmental disabilities on a day-to-day basis; and may include parents and teachers of both children with and without specific needs.



Christopher Flint
AACTION Autism
17-18 January 2008
National Centre, Delhi

"Training in Structured Teaching"

The TEACCH approach uses structured teaching that can be provided in any educational setting, including regular education classrooms and ‘special’ subjects such as music, art, physical education, foreign language, speech/language and occupational therapy sessions. Services based on the TEACCH approach can also be used in the home, residential programs, and private housing; play and other social groups; in the cafeteria, school bus, and playground; summer camps and other recreation programs; individual and group counseling sessions; and at employment sites.

Structured teaching fosters the development of independence as well as the development of enjoyable social interactions and meaningful social relationships which are important priorities. Structured teaching can be an excellent foundation for facilitating social activities that would otherwise be too unpredictable and confusing for students with ASD. In this workshop, Christopher Flint and his team provided an overview of the structured teaching philosophy and implementation as it applies to children with ASD. Christopher presented the information in an interactive video format where participants had a chance to watch children with ASD engaged using the principles of structure. Participants had the opportunity to see and learn about schedules, learning tasks, assessment, communication, leisure, and behavior management. Also, participants practiced making structured activities involving a variety of skills.

Building Bridges South Asian Regional Conference
15-16 January 2008
National Centre, Delhi

Day by day schedule
Presentation abstracts
Speaker information

For pictures, see these from AACTION Autism: http://www.flickr.com/photos/aaction/

 

Featured Speakers and Presentations Included:

Adolescents and Adults: Community, Work, and Sexuality

  • Employing Strengths, Interests, and Negotiating Relationships in the Workplace: Observations on Promoting Success by STEPHEN SHORE
  • Employment Opportunities For Persons With Autism by THORKIL SONNE
  • Developing Qualification Modules for Person-Centered Community Inclusion Networks by DR. EVEMARIE KNUST-POTTER
  • The Quandary of Autistic Adolescents by DR. JITENDER NAGPAL

    First Person Accounts
  • Sexuality & Intimate Relations For People On The Autism Spectrum: An Inside View For Success by STEPHEN SHORE
  • Unconventional Strategies for Living with Asperger's Syndrome / The Life of an Asperger Savant by QAZI FAZLI AZIM
  • Without Disclosure: My Life with Autism by ACHYUTANAL GUHA
  • My School Days by AMITAVA BASU

    Neurological, Diagnostic and Medical Issues
  • When and How to Use Medications in Children with Autism by DR. THOMAS OWLEY
  • Epidemiology of Autism and the Influence of Environmental Factors on Autism by DR. SHOBA SRINATH
  • Medical Management of Autism by DR. R.K. SABHARWAL
  • Genetic and Neuroimaging Approaches to Understanding Autistic Traits by DR. BHISMADEV CHAKRABARTI
  • Asperger's Syndrome: Pitfalls in Diagnosis by DR. VIBHA KRISHNMURTHY

Child-Based Interventions

  • Creating Structures While Teaching Persons With Autism by CHRISTOPHER FLINT
  • Role Of Music Therapy In Persons With Autism by ANNIE TYHURST
  • Role of Homeopathy in the Management of Autism by DR. M.A. RAJLAKSHMI
  • An Initiative in Facilitating Peer-Play in Children on the Autistic Spectrum by PARUL GUPTA, SURABHI VERMA and PURNIMA GAUTAM
  • The Effect of Individual versus Group Occupational Therapy Intervention on Social Skills in Children with Autism by SAADIYA MERCHANT and ANJALI JOSHI

Family

  • The Need of a Communicative Environment for Autistic Individuals at Home: A Case Study by DR. NUSRAT AHMED and DR. LEEDY HOQUE
  • A Parent Training Approach for Management of Children with Autism by SALONIE RAZDAN, AARTI THAKORE, and VIBHA KRISHNAMURTHY
  • Enhancing Coping Skills in Parents of Children with Autism by DR ASHUM GUPTA and NIDHI SINGHAL
  • Disability and the Social Construction of Motherhood: Mothering a Child with ASD in Urban India by SHUBHANGI VAIDYA
  • Genetic Counseling in Autism by MONIDIPA BANERJI
  • Living with Asperger's Syndrome by INDRANI BASU

Country Overviews

  • The Hidden Epidemic of Autism: Implications and Challenges for Sri Lanka by DR. HEMAMALI PERERA
  • Autism Awareness in Pakistan by RUKHSANA SHAH
  • Autism in Bangladesh by ANWAR HOSSAIN
  • Building Community Support In India by INDU CHASWAL
  • And, speaking on History of Autism: ADAM FEINSTEIN


Dr. Barbara Kalmanson
9 January 2008
National Centre, Delhi

"Playing to Learn: An Introduction to the DIR/ Floortime for Families with Children with Autistic Spectrum Disorders"

The DIR (Developmental, Individual-Difference, Relationship-Based)/ Floortime approach provides a comprehensive framework for understanding and treating children challenged by autism spectrum and related disorders. It focuses on helping children master the building blocks of relating, communicating and thinking, rather than on symptoms alone. It is a parent-centred approach that focuses on addressing emotional development, in contrast to approaches that tend to focus on cognitive development. Floortime addresses the disordered development exhibited by children with autism by attempting to teach them how to relate socially, communicate, and think. It teaches parents and carers how to interact with the child to help him learn and move up the developmental ladder, by going with the child's interest, and building on what the child does, to encourage more interactions.

Dr. Barbara Kalmanson is a psychologist and special educator who has been working in the field for 36 years. She is the founder of the Oak Hill School, a therapeutic education center for children with Autistic Spectrum and related Disorders. Dr Kalmanson and colleagues Stanley Greenspan and Serena Wieder have worked together since 1980 developing the DIR/ Floortime approach to intervention with children and families. Her publications focus on early identification of autistic characteristics in infants and toddlers, relationships as the basis of all interventions with families, DIR as a model for
intervention and affective development.

Hilde De Clercq
5 December 2007
National Centre, Delhi

"Detail Thinking in Individuals with Autism"

Hilde is a parent professional with a background in linguistics who is now the Director of the Centre for Training in Autism in Antwerp, Belgium. Hilde is a trainer, author, and an international associate editor of Good Autism Practice. She gives workshops on subjects such as communication, the cognitive style of people with autism, high functioning persons with autism and people with Asperger Syndrome, and parent-professional collaboration.

Action for Autism
9 May 2007
National Centre, Delhi

"Enabling Communication"

Unlike other developmental disabilities, language and communication take completely different developmental paths in autism. Speech does not equate with communication. While some individuals with autism develop no speech, others may be vocal at different levels. Language may develop with the child having little idea how to use it for communication or even to understand how others use language for communication. Much of the inappropriate behaviours in autism have their root in these difficulties. Children with autism are often therefore mistakenly perceived to be 'stubborn' or' willful.' The workshop will cover an understanding of differences in the development of communication in autism and ways to teach communicative function and the use of both speech as well as assistive and augmentative modes of communication. The workshop will incorporate question answer sessions and interactive demonstrations. The workshop is open to parents, professionals and anyone who works with children with developmental disabilities on a day to day basis.

Action for Autism
8 May 2007
National Autism Centre, Delhi

"Behaviour Modification"

Behaviour modification is used in the management of children with various developmental disabilities. The difficulties faced by individuals on the autistic spectrum in particular, often manifest as complex and challenging behaviours. Behaviour modification with the reinforcing of wanted behaviours is the cornerstone of the management of autism: in changing behaviours as well as in teaching skills. Behaviour modification is used in teaching children to 'attend,' control 'temper tantrums,' and for helping the child learn appropriate and socially accepted behaviours. The workshop will cover an understanding of the reasons behind behaviours, assessment and management procedures. Though the workshop will focus on autism spectrum disorders, the methods to be covered are equally effective with children with developmental delays.

The workshop will incorporate question answer sessions where participants will be encouraged to problem solve. The workshop is open to anyone who works with children with developmental disabilities on a day to day basis.

Action for Autism
21 February 2007
National Centre, Delhi

"Two-Day Training for Professionals"

The National Trust, through its State Nodal Agency AADI, has taken the initiative for a two-day training in working with children with Autism, for Professionals in the field of Special Needs Education. Action For Autism will conduct the trainings, which targets professionals who:

~ hold a Diploma in Special Education (Mental Retardation), and

~ who are already working in the disability sector.

The training will help enhance their skills and enable them to include children with autism in their existing services.

The training will consist of a full day of lectures followed by another day of placement at Open Door School.

Dr. Mohammad Ghaziuddin
5 January
National Centre, Delhi

"Depression and Anxiety Disorders in Individuals with ASD"

Depressions in youngsters with Autism Spectrum Disorders is increasingly acknowledged to be of significant concern in India. Dr. Ghazuiddin will take the audience through the signifying characteristics of autistic diagnosis and the association of other medical disorders, the mechanism underlying these associations, an overview of common psychiatric disorders that occur in persons with autism, Asperger syndrome or PDD, and the treatment strategies.

Mohammad Ghaziuddin, MD is a Clinical Professor of Psychiatry, Director, Child and Adolescent Residency Program and Director ADHD Clinic, Michigan State University, with a special interest in children and adults with autism and related disorders. Author of numerous scientific articles on various aspects of autism, Dr. Ghaziuddin has lectured widely both in the US and abroad and in addition, is on the editorial boards of several leading scientific journals. The lecture will be of interest to medical professionals and researcher, other practitioners, and interested parents.

Margaret Lobo
1 December 2006
India Habitat Centre, Delhi

"Music as Therapy"

Margaret Lobo a music therapist from London will give a talk on Music Therapy and her work with the Otakar Kraus Music Trust in England. Music Therapy seeks to harness the power of music to enable people who find it hard to communicate through traditional channels to express and fulfil themselves. Margaret and her husband Walter have set up the Music Therapy Trust a registered charity in India and are pursuing the establishing of a Postgraduate Diploma in Music Therapy training programme to begin in Mumbai and Delhi.

This will be of particular benefit for those with special emotional and developmental needs as well as those working with people of all ages who have psychological, behavioural, learning or physical difficulties. Open to all. Margaret Lobo is the Founder, Otakar Kraus Music Trust, UK.

Thomas A. Brown
16 July 2006
India International Centre, Delhi

"Relationship Development Intervention"

There is increasing awareness of the crucial importance of enhancing Social Skills in individuals with autism. Breaking away from traditional treatment methods, Relationship Development Intervention (RDI) has moved beyond simply teaching children scripted behaviors with limited value in many real-life interactions. RDI’s vision is a quality of life for our children that we all take for granted for ourselves – experiencing delight, sense of pride, comfort, or satisfaction from our relationships and social interactions. RDI thus focuses on getting children to learn the motivations behind all social behaviour: why we work so hard to maintain a friendship, for instance. While RDI is helpful to all children on the spectrum, it may be especially useful to educators and parents of mainstreamed children who often begin to have difficulties in their social interaction leading to possible exclusion.

The RDI developmental model targets deficits such as emotional referencing, social coordination, declarative language, flexible thinking, executive information processing and emotional memory. The goal of RDI is to provide individuals with ASD the cognitive, emotional, communicative and social tools needed to lead a fully inclusive life that their disorder typically deprives them of. This dynamic program is accomplished through measurable therapeutic objectives that are delivered in a gentle, loving manner that builds on the power of human engagement. Additional information on RDI can be found at http://www.rdiconnect.com

Thomas A. Brown is Executive Director of the Autism Support Center, a nonprofit that specializes in the treatment of children and adolescents with autism spectrum disorders. Mr Brown has worked with children with disabilities for twenty-six years and published research related articles. He is a Certified Relationship Development Intervention Provider in the USA.

Davis Wimberly, MT-BC, NMT
28 May 2006, 9:00am - 1:00pm
New Delhi

"The Use of Music Therapy with Individuals Diagnosed on the Autism Spectrum"

Music therapy is a well-established allied health care profession similar to occupational and physical therapy. It consists of using music therapeutically to address behavioral, social, psychological, communicative, physical, sensory-motor, and/or cognitive functioning. For those diagnosed with autism and autism related challenges, music therapy provides a unique variety of music experiences in a structured and developmentally appropriate manner to effect changes in behavior and facilitate acquisition of skills based on individual need. Therefore, the music therapy treatment process is customized to the individual. Music therapy may include the use of behavioral, biomedical, developmental, educational, humanistic, adaptive music instruction, and/or other models. Additional information on music therapy can be found at www.musictherapy.org

This will be an interactive workshop focusing on the music therapy process. This workshop will contain both didactic and experiential segments. It will introduce specific music therapy interventions used to address goal areas for individuals with autism, such as speech/language development, motor enhancement, cognition and psychosocial behavior. The workshop will also cover the education and certification process of music therapists in the United States and stages of the music therapy treatment process.

Davis Wimberly, MT-BC, NMT, is a Board Certified Music Therapist and Neurologic Music Therapist in the United States. He lives in Denver, Colorado, where he works with individuals diagnosed with autism, as well as with individuals with a variety of other disabilities and needs.

February 4, 2006
New Delhi

"Workshop on Management of Children and Adults through Behaviour Modification"

Behaviour modification is used in the management of children with various developmental disabilities. The difficulties faced by individuals on the autistic spectrum in particular often manifest as complex and challenging behaviours. Behaviour modification with the reinforcing of wanted behaviours is the cornerstone of management of autism: in changing behaviours as well as in teaching skills. Behaviour modification is used in teaching children to 'attend', control 'temper tantrums', and for teaching the child to behave in a more appropriate and socially accepted manner.

The workshop will cover an understanding of the reasons behind behaviours, assessment, and management procedures. Though the workshop will focus on autism spectrum disorders, the methods to be covered are equally effective with children with developmental delays.

The workshop will incorporate question answer sessions where participants will be encouraged to problem solve. The workshop is open to anyone who works with children with developmental disabilities on a day to day basis. The workshop will run from 10:00 am to 4:00 pm.

Hilde De Clercq
Theo Peeters
Vibha Krishnamurthy
Amit Sen
Anjali Josh
i

2-4
December 2005
New Delhi

"TEACCH and An International Consensus Approach"

TEACCH has been the origin and the source of inspiration for many educational strategies that are now accepted at an international level, especially those strategies that 'try to understand autism from within.' TEACCH gains particular relevance for the growing child and the need to impart prevocational skills. The workshop will cover the principles and influences of TEACCH, predictability, collaboration with parents, assessments, communication etc. The workshop will be open to: Professionals who have a working knowledge of autism and experience of working with children with autism; Parents who have undergone some previous training.

RESOURCE PERSONS:
Hilde De Clercq
Theo Peeters
Vibha Krishnamurthy
Amit Sen
Anjali Joshi

Merry Barua
11 March 2005
The India International Centre

"Learing to be Happy: Our Way"

Merry Barua is a disability activist who is creating a comprehensive set of services on the Indian subcontinent that would improve the quality of life for autistic children and the people in their lives, while making known the need for public and governmental recognition of this communication disorder. Although autism affects more people than Down's Syndrome, the disability remains misdiagnosed by the medical community, misunderstood by autists' parents, and unknown by the general public. Through the provision of nearly a dozen services, Merry Barua is attacking all of these problems and creating opportunities for autistic children that have never before existed in India or its neighboring countries.

Action for Autism Core Staff
5 February 2005
Indian Social Institute, New Delhi

"Workshop on Behaviour Modification"

This objective of the workshop is to help parents and other carers devise strategies to help children they teach or otherwise care for. Behaviour management is an essential component of educating children with developmental differences. The difficulties faced by individuals on the autistic spectrum often manifest as complex and challenging behaviours. The workshop will cover an understanding of the reasons behind such behaviours, assessments and management procedures, as well as how to teach new behaviours and strengthen and maintain existing appropriate behaviours. The workshop will incorporate question answer sessions where participants will be encouraged to problem solve.

Mithu Sen
18 December 2004
Indian Social Institute, New Delhi

"Developing Individualized Education Plans"

Children with special needs require educational programmes that are specific to their individual and unique requirements. Planning is crucial in developing appropriate programmes because every child is an individual with specific needs. This workshop will help us to understand and review individual needs and determine and develop IEPs that include all areas of skills so that learning is not narrowly focused only on certain aspects, but has a broader and well balanced vision.

Mithu Sen is an MS in Special Education from Madison University with extensive experience in teaching children with special needs, as well as training in Psycho-educational analysis, Brain Gym, and Direct Instruction. Mithu has worked with children having a range of special needs including SLD, ADHD, ADD, PDD and Slow Learners.

Mithu is currently teaching at the Hamilton Learning Centre, Lawrence College, Ontario. Mithu has worked with a range of strategies including Remediation Plus, Reading Mastery, Reasoning and Writing, Encoding and Decoding and Word Attack programs, SRA expressive writing series, and Saxon Math.

Steve Ward MA CABA and Teresa Grimes MS BCBA
27, 28 and 29 February 2004
New Delhi

"Verbal Behavior: From Theory to Practice"

Participants learned teaching strategies based on the science of behaviour analysis. Participants learned to think and behave as behaviour analysts and understand how to increase desired behaviours, decrease undesired behaviours, and teach new skills. The workshop was planned for parents, special needs professionals, speech pathologists, psychologists, and anyone working with children with autism. Topics included:
  • Assessment (ABLLS)
  • Framing an IEP
  • Compliance training
  • Teaching Strategies
  • Teaching Language Skills
  • Natural Environmental Training (NET)
  • Advanced Language Skills

Dolly Bhargave, SLP
28 December, 2003
India International Centre, New Delhi

"Innovative Communication Programming: Using AAC strategies with individuals with ASD to promote communication, literacy and positive behaviour support"

Workshop topics included:

  • Introduction to AAC
  • Assessment of Intentional and Symbolic Communicators
  • Using Visual Connectors and Question Maps to determine the types of communication systems that would be needed for any given activity, identify the vocabulary that is needed to be included in the communication systems, and a map for the communication partner to know how and when to use the communicative systems to scaffold the individual's receptive and expressive skills
  • Using commercially available books to develop literacy skills in children with communication difficulties. Creating your own personalized material to develop literacy skills in older children and adults which communication difficulties
  • Using positive behavior support to minimize challenging behaviour, promote environmental management and skill building

Rita Jordan, Ph.D., Reader in Autism studies at The University of Birmingham
6-7 December, 2003
India International Centre, New Delhi

"Planning and Executing an Educational Curriculum with a Focus on Communication and Behaviours"
Day One:
Special needs of children with Autism Spectrum Disorders
Developing an eclectic Curriculum
Inclusion and Autism Spectrum Disorders
Developing communication and language

Day Two:
Challenging behaviour and the individual with Autism Spectrum Disorders
Sexual and emotional problems in ASD's.


Dr RK Sabharwal
31 October 2003, 6:30 PM
Casuarina Hall, India Habitat Centre

"Neurological Behaviour Aspects of PDDs"
One third of all persons with a Pervasive Developmental Disorder will have at least one seizure in their lives. Dr RK Sabharwal is an eminent paediatric neurologist, Consutltant Neurologist to The Epilepsy Centre, Holy Family Hospital, Aashlok Hospital and Paediatric Neurologist at Sir Ganga Ram Hospital. Dr Sabharwal sees a wide spectrum of children with PDDs in his practice.


Action for Autism
16-19 October 2003
Spastics Society of Tamil Nadu
Organised by DEC

"General Training Workshop in Bangalore"
See schedule for description of workshop

 

Dr Achal Bhagat
1 September 2003, 6:15 PM
Casuarina Hall, India Habitat Centre

"Sexual Concerns and the Growing Child"
Awareness of ones body and sexual exploration are a natural part of growing up. All children, whether typically developing or with a disability, go through the same process of exploration, discovery and stimulation. In the Indian context such normal developmental behaviours are often viewed as deviant. And when the child has a disability such behaviour is viewed with extreme prejudice.

As a result both educators as well as parents are often confused about how to handle the growing child. Dr Achal Bhagat, is an eminent psychiatrist consulting at the Indraprastha Apollo Hospital, and the director of Saarthak, an NGO working in the area of mental health. Dr Bhagat will give a talk on an sexual concerns: an issue that affects families across the board but remain rarely discussed. This will be an opportunity for families and other carers to air their concerns and have them addressed.


Dr. Rubina Lal
29 June 2003
India International Centre, New Delhi

"Teaching an Alternative Mode of Communication: A Workshop on Makaton"
Sign language is increasingly gaining focus, as a means of augmentative communication especially for non-verbal children with autism. It has several advantages over PECS (Picture Exchange System). Sign language is conceptually closer to speech than PECS and is easily portable across locations in the child's environment. Sign Language facilitates spontaneity, maintaining flow, and the use of language in a truly functional manner. Contrary to popular belief, it has been seen that merely having poor motor imitation does not necessarily preclude a learner from using sign as a response form, and if a good attempt at teaching sign is attempted using error less teaching procedures and focusing first on the most motivating things in the child's life, motor imitation often improves. Even for verbal children, teaching sign along with the word has been shown to dramatically improve retention and spontaneous use of words.


Action for Autism
14 June 2003
India International Centre, New Delhi

"Dealing with Challenging Behaviors"
Behaviour management is an essential component of educating children with autism. The difficulties faced by individuals on the spectrum often manifest as complex and challenging behaviours. The workshop will cover an understanding of the reasons behind such behaviours, assessments and management procedures. The workshop will present a scientific approach to behaviour management based on well-established methods.


Dr. Anjali Joshi
14 December 2002
India International Centre, New Delhi

"Using Sensory Integration in Everyday Routines"
Action for Autism (AFA) takes the pleasure in announcing a workshop by the noted therapist Dr Anjali Joshi. Dr Joshi is an Associate professor at the Occupational Therapy School and Center, K.E.M. Hospital, Mumbai since 20 years. She helped set up the Sensory Integration clinic in K.E.M. Hospital in 1995.

Dr Joshi is a certified Sensory Integration (S.I.) trained Occupational Therapist from the University of Southern California along with a Masters in Occupational Therapy (O.T.). She has conducted workshops for therapists as well as parents in different parts of the country and yearly workshops in Mumbai. In addition Dr Joshi regularly lectures on Sensory Integration at different schools and training centers. Dr Joshi has published papers on S.I. in Indian and British journals of O.T. The workshop in Delhi is planned to be an Introduction to S.I. where she will cover the sensory systems, the dysfuctions of the systems, how to identify the problems in children and incorporate sensory activities in every day routines of the child. This workshop will be accompanied by video clipping of therapy and question answer session.


Autism Workshop: Autism Society of West Bengal
5-8 December 2002
Surho Sen Mancha, Jodhpur Park, Kolkata

Action for Autism will present a similar workshop to the annual parent and professional event, this time in Kolkata.

Dates: 5-8 December 2002
Resource Persons: Team from Action For Autism
Contact Persons:

Tapati Ghosh, 472-0422

Chandra Bose,
417-0860/
Indrani Basu at:
indrani_basu55@yahoo.co.in


Annual Parent and Professional Workshop
3-6 October 2002
Indian Social Institute, New Delhi

This workshop is open to anyone who wants to understand Autism, the myriad ways it affects individuals, the methods used to teach them cognitiev, self-help and social skills, and most important, how these skills can be taught. Like all AFA seminars and workshops, the sessions will be free of jargon and will be illustrated with practical examples based on AFA's hands-on experience and exposeure to children with autism of varying ages and across the specturm. The workshop will follow a format of lectures, video clips, question and answer sessions, and discussions. Individual consultation for families will be provided on the last day of the workshop. The consultation will be available to those families who make prior bookings. Daycare will be provided during workshop hours for those who find it difficult to leave their children at home. Bookings must be made with Action for Autism well ahead of time.

Dates: 3-6 October 2002
Resource Persons: Team from Action For Autism


Training Workshop in Chennai
11-14 July 2002

WECAN TRUST, the Chennai based parent support group and service provider, is organizing a workshop for cares of persons with autism spectrum disorder (ASD). The topics cover understanding the child with an ASD, managing behaviours, teaching communication and social skills, and specialized methods for teaching cognitive and self-help skills.

Dates: 11 - 14 July 2002
Resource Persons: Team from Action For Autism
Contact Person: Indrani Basu
Tel: 044 4464655
Email: wecantrust@rediffmail.com


Autism: A Medical Perspective - National Conference on Autism
14 December 2001
India International Centre, New Delhi

Action for Autism is pleased to announce the first National Medical Conference on Autism. AFA routinely organises insightful and practical workshops, seminars and conferences for parents and educators. Most previous events have dealt largely with educational aspects. This Conference will bring together speakers to provide invaluable information and advice on specific medical matters- often a source of particular anxiety to carers of autistic children. These include the presence and treatment of seizures, hyperactivity, and depression and panic attacks particularly in adults with ASD, as well as obsessional and aggressive behaviour. What solutions can medicine provide to combat these problems? The conference promises to be informative and up-to-date, keeping us abreast of developments in research as they take place internationally. Of particular interest being the emerging field of Bio-medical treatments and the work of eminent researchers such as Shattock, Waring, Wakefield, Megson, and Reichelt.

Topics to be covered include Pervasive Developmental Disorders, Clinical Manifestation, Differential Diagnosis, Drug Therapy and Hyperactivity, Management of Seizures, Biomedical Treatments, Medication and the Adult with Autism.

Resource Persons & Speakers

Dr Nimesh Desai - Professor and HOD, Department of Psychiatry, Institute of Human Behaviour & Allied Sciences

Dr RK Sabharwal - Specialist in Pediatric Neurology and Epilepsy He is attached to The Epilepsy Centre, Holy Family Hospital, Aashlok Hospital and Sir Gangaram Hospital

Dr Achal Bhagat - Senior Consultant Psychiatry and Psychotherapy Apollo Hospital and Director Saarthak

Dr Narendra Singh - Assistant Professor, Department of Psychiatry, Institute of Human Behaviour & Allied Sciences

Dr Vibha Krishnamurti - Specialist in Developmental and Behavioural Disorders and consults at the Jaslok Hospital, Mumbai and Lady Tatan Tata Cancer Institute & Reasearch Centre, Mumbai

Dr Zenobia Sharma - Based in London Dr Sharma is also qualified in Psychology and trained in Counselling. With her younger son Gyan diagnosed with ASD and severe language delay her medical background engendered a keen interest in issues of toxicity, allergy and drug intervention related to Autism and she has been especially inspired by the work of Paul Shattock, Rosemary Waring and Andrew Wakefield. Dr Sharma writes and gives talks on many aspects of Autism for the National Autistic Society UK, the Options Program USA among others.

Indu Chaswal - Director Education at Action For Autism & Open Door

Merry Barua - Founder Director Action For Autism & Open Door

Lisbeth Bramaholm, Denmark
9 December 2001
Action for Autism & Open Door Centre, Delhi

Lisbeth Bramaholm is a Special Educator at a local school outside Copenhagen. She teaches a class of children with autism and other communication disorders where she makes extensive use of Social Stories. Lisbeth will give a talk on Social Stories, how to write them and how to use them effectively with our children. Open to all members of AFA. Non members will have to pay a small charge of Rs 50/- to cover refreshment and other costs.

Lisbeth Garhn, Denmark
11 September 2001
India International Centre, New Delhi

Lisbeth Garhn is an Occupational Therapist now based in Spain. Lisbeth's initial training was in Denmark as a kindergarten teacher specialising in children and youngsters with physical and mental disabilities. As an Occupational Therapist she has trained in The Alexander Principle and in Kinetics. Lisbeth has worked with children, youngsters, and adults with learning disabilities as well as with autism and has had some remarkable results with children with autism that she will share with us. She has in addition worked for many years in a residential setup for persons with disabilities. Lisbeth has combined her training with her many years of experience and devised her own system for use with children with autism. For many years she worked as a team along with Bente Gad Johansen, who many of us are familiar with, providing education and occupational therapy.

Autism - Hope and Help Training Workshop for Parents and Professionals
14-16 June 2001
Panaji, Goa
AFA in conjuntion with Sangath Centre

The Sangath Centre is pleased to announce an autism training workshop conducted by the resource team from Action for Autism, New Delhi. This 3-day program will be open to parents as well as professionals who work with children with autism. The workshop will be an opportunity to learn practical training techniques, plan educational programs and network with other parents and professionals. We strongly recommend that both parents attend the workshop. Free daycare was be provided during the workshop hours for those who found it difficult to leave their children at home. Accommodation was arranged at Caritas Guest Home, Panaji for a limited number of attendees with prior notice. T

Topics covered:
Diagnosis of Autism
Teaching communication
Managing challenging behavior
Training in self-help skills
Dealing with sensory defensiveness

Mette Deibjerg, Denmark
15 February 2001
India International Centre, New Delhi

A training workshop by a visiting professional from Scandinavia. Mette Deibjerg has trained and specialised in Autism in Denmark and Chapel Hill, USA. Mette Deibjerg is currently the Pedagogical Chief Adviser at the Brondager School. She also trains staff and works in a supervisory capacity in autism services. In addition she runs training courses for professionals together with Gary Mesibow and other members from his staff. Mette Deibjerg will present an overview of how they see Autism at the Brondager School, Hellhedstillbudet, and the theory behind their educational focus. Her workshop will be illustrated with films that will give examples of their daily life with their children. The workshop was open to parents, professionals and anyone interested in learning practical and effective teaching strategies for children with autism.

Linda Hodgdon & Julie Robinson, U.S.A.
12-13 December 2000
India International Centre, New Delhi

Two Training Workshops by visiting professionals from the USA. The workshops were open to parents, professionals and anyone interested in learning practical and effective strategies for teaching Communication Skills, and dealing with Sensory Issues in their children, students, and wards.

Workshop 1:
TEACHING YOUR CHILD COMMUNICATION THROUGH PRACTICAL STRATEGIES
Linda Hodgdon author of "Visual Strategies for improving communication" and also "Solving Behavior Problems in Children with Autism" is a Speech Language Pathologist.

Workshop 2:
HELP YOUR CHILD LEARN BETTER THROUGH INTEGRATION OF THE SENSES
Julie Robinson is an Occupational Therapist working at a Sensory Integration Clinic.

Dr. Sanjay Chugh, India
25 March 2000
India Habitat Centre, New Delhi

"Parenting a Child with a Disabled Sibling"
From the day when parents first learn that their child is disabled, a long journey starts in which the families' energies get focussed on the child with the disability. This happens no matter what the disability is, and particularly so if the child has a complex disability like autism. There are hundreds of books written on the subject of parenting the disabled child, scores of sites on the Internet with interactive chat rooms. However, very little on how to parent the typically developing child when there is also a disabled child in the family.

Parents of children and young people with disabilities - autism, cerebral palsy, mental retardation, and other mental or physical disabilities, as well as professionals who counsel parents and young people, had the opportunity to attend a discussion with Dr Sanjay Chugh to address their concerns in these areas. Dr Sanjay Chugh is an eminent Psychiatrist and a well-known and familiar face for Delhi residents. An expert in interpersonal relationships and its challenges, Dr Chugh is frequently featured in the print and electronic media. His open, non-judgmental and caring advice has been a source of support and inspiration for many people.

One of the projects of Action For Autism is a Parents Support Group that meets regularly to discuss, share with, and learn from each other. Meetings cover areas like teaching strategies suitable for a child with autism, dealing with challenging behaviours, setting up home programmes for autistic children among others. The topic of the last meeting of the Parents Support Group, Parenting a Child with a Disabled Sibling is one that though rarely addressed affects parents of children with any disability. With the support of the Habitat World, this meeting was open to all those who are parenting typically developing children along with a disabled child.

Parenting a child - any child - is a demanding and challenging job. But when the child has a disability parents face daily complex issues that require them to draw deep into themselves to work out new and unusual solutions.

"My son should take care of his challenged brother after our death."

" I want Deepa to understand that I need to spend more time with her brother. Am I being unfair to Deepa?"

"Tarun should not get irritated if his disabled sister plays with his toys; after all she does not have any friends."

"Do I expect Neesha to compensate for the unfulfilled expectations because of my other child Jyoti who is disabled?"

In addition to the problems directly related to bringing up their special child, parents often have many concerns about the impact on their other children. The siblings of the child with the disability have to cope with an environment at home that is radically different from ones in which their peers function. The challenges and situations they face are unique, and the usual outlets may be inadequate to help them resolve their concerns. Parents can often be flummoxed trying to maintain a balance between the needs of their special child and those of their normally developing child.

How can parents navigate this complex terrain and help their typically developing children grow into healthy adults? Dr Chugh's talk addressed these and related issues. It was followed by an open forum that will enable participants to share experiences, raise questions, and discuss issues of their personal situations.

Dr. Joaquin Fuentes, Spain
26-27 July 1999
India International Centre, New Delhi

"Autism: Meeting the Challenges"

The keynote speaker was Dr. Joaquin Fuentes a prominent Spanish psychiatrist who has done a great deal of clinical work in the area of autism, and is also the Director Medical Services at GAUTENA, in his native country.

Some of the areas covered in the workshop:
- the main ingredients of a treatment plan with a life span perspective
- integration as an educational goal
- integration in the family and in the wider community
- the impact, efficacy, and/or possible harm of long-term drug use in dealing with autism
- intervention strategies for children with autism
- the utility of appropriate service delivery and available resources
- an explanation on the concept of the "autistic spectrum"

The workshop was attended by "carers" who work closely with or teach individuals with autism, either as parents or in a professional capacity; as well as school teachers, administrators, and others in mainstream schools who are in a position to encounter autism. There was a related workshop for medical professionals the day before on 26 July 1999 at the same location. The discussion of this workshop focused mainly on making a diagnosis of autism that will lead to adequate treatment, details on classification (DSM, ICD), epidemiological and biological data regarding autism and the main ingredients of a treatment plan with a life span perspective.